Long day at the hospital from 8am to 5pm. Blood test this morning revealed solid number for platelets and improved kidney functioning. Hemoglobin , magnesium, and LDH are still lagging. Austin's body is struggling to tolerate the ongoing plasmapheresis with a lot of fluid retention and generally feeling crappy.
Another point of discouragement is sudden onsets of extreme pain in his stomach which makes us fear that we still have a long way to go to heal the colonitis. Since he is now outpatient at Saint Joe we will need to redirect treatment for digestive issues back to our family doctor and Goshen Hospital. For Austin, it feels like being back at square one and it is very frustrating. The renal doctors at Saint Joe just keep saying that his body went through an extreme illness and it will just take time for everything to heal.
We feel the next two weeks will require much mental fortitude to fight through the treatment regimen when "feeling better" is still elusive. It seems the pheresis is doing it's job so our prayers now focus on the complete healing of Austin's digestive track.
How frustrating...I can't even imagine...hang in there guys...we will continue to pray for fortitude for all of you to keep on going each day in addition to the healing process to continue for Austin...maybe you'll run into my mom or dad, Maurice Fred & Cecelia Yvonne, at Goshen Hospital where they both volunteer...I know they are praying for all of you, too!
ReplyDeleteWe appreciate the updates, Ritch & Char, and care deeply for your family...
Cleveland Rosy & Craig