Sweet release! When I (Ritch) arrived this morning by 7:20am Austin was already packing his room. Something tells me he is ready to split this joint. He told me his stomach pain went away during the night and that he had had probably the most restful sleep since being admitted to the hospital.
The doctor came in shortly after to confirm that his blood numbers were in the normal range and that he would be going home. He was taken for another plasma treatment this morning followed by a magnesium drip IV which should mean he will be done by early afternoon.
The plan for next week is still quite intense with daily blood tests and a minimum of 3 treatments (more depending on numbers). This will mean arriving at the hospital by 8am for blood work, having plasma treatment 2 hours later, and probably getting out by 2pm. On the days when he doesn't get treatment we will go to Goshen Hospital for blood work. His condition will be monitored daily at least for the next two weeks.
We anticipate difficult days ahead as the road to recovering also includes nursing a colon that is still in the healing process. Char and I both have been shown how to take care of the perm-cap port that he will need to keep infection free - also means only sponge baths. As you can imagine, Austin leaves the hospital with fear of blood numbers dropping again or of eating something that will aggravate his system. He will need both physical and mental endurance as he works at regaining his health.
We have decided to continue this blog with periodic updates of Austin's recovery at least through next week. Our gratitude runs deep for love expressed and prayers offered.
God bless! Ritch
Saturday, July 31, 2010
Friday, July 30, 2010
July 30 - AM Post
The doctor came in this morning with the good news that if things continue to be stable, he can move to outpatient status after his plasma treatment tomorrow ( Saturday). Yeah! The nurse is starting to practice her cart wheel! :) Last night was a tough one ... hospitals really aren't the place to come for rest so Austin was awake much of the night finishing his blood transfusion around 12:30 or 1am. and needing to give blood at 4:30am. As his body continues the healing process, his emotions continue to be on a roller coaster. This morning the doctor was happy to say that his platelet count is at the edge of normal and his hemoglobin was up to 8. He's getting his 11th plasma treatment right now. The ladies that do his treatment have been so kind and we are so thankful for their care and support.
The outpatient journey will be a new routine with M,W,F spent hanging out at St. Joe all day for blood draws, treatment and whatever else is needed. T and Th he can go to Goshen General for a morning blood draw and hopefully have the rest of the day to hang out at home or do whatever he feels like doing (he's quite excited about the option of having the choice of what to do with his time :).
Thank you for continuing to follow Austin's journey. We feel the prayers and ask for continued strength for the next part of the process.
The outpatient journey will be a new routine with M,W,F spent hanging out at St. Joe all day for blood draws, treatment and whatever else is needed. T and Th he can go to Goshen General for a morning blood draw and hopefully have the rest of the day to hang out at home or do whatever he feels like doing (he's quite excited about the option of having the choice of what to do with his time :).
Thank you for continuing to follow Austin's journey. We feel the prayers and ask for continued strength for the next part of the process.
Thursday, July 29, 2010
July 29 - PM Post
After treatment today two additional units of blood needed. Supposed to be a 4 hour process but still waiting on second unit of blood at 9:30pm. Austin has done a good job walking today even though attached to an IV pole all afternoon/evening. As the time gets closer to the possibility of getting out of here it becomes that much more difficult to hang in. Pray for patience. Note: One nurse assistant said she would do a cartwheel if Austin got released tomorrow...if so we'll try to get a pic up on the blog.
July 29 - AM post
Came in this morning to see Austin sitting in a chair eating his breakfast with a t-shirt and shorts on... looked like a normal guy. :) It's fun for him to ditch the hospital gown for a moment or two. We continue to be encouraged as his blood levels continue to progress in the right direction. I've grown up knowing our bodies are intricately made but I have a very new understanding of this truth after daily dissecting his red blood cell production. The one level that continues to lag is his hemoglobin which is back down to 7 so he will be given two more pints of blood today. He will also have a cat scan of his head to just confirm that his headaches are just a normal respond to the trauma his body has been through.
Yesterday was a good day of eating, walking the halls and visiting with family and friends. It was also the first day he wanted to get on his computer and visit Facebook which is a very good sign that he's feeling better! :) He has really enjoyed all the cards and many other reminders that he is being thought of. We have a deeper understanding of the meaning of Christian community... experiencing the assurance of God's love through his people ...through a visit and a hug, through a card that makes you laugh, through a booklet of personal messages and scripture verses that add encouragement to the day. These and many other ways have reminded. Austin and our family know that we are truly blessed.
The tentative plan is to receive the plasma treatment today and tomorrow and possibly Saturday and hopefully he can soon take a day off of hanging out in the dialysis lab. There is some talk of moving to outpatient by the end of the week Austin's trying not to get his hopes up. :) Thank you for your continued prayers for complete healing.
Yesterday was a good day of eating, walking the halls and visiting with family and friends. It was also the first day he wanted to get on his computer and visit Facebook which is a very good sign that he's feeling better! :) He has really enjoyed all the cards and many other reminders that he is being thought of. We have a deeper understanding of the meaning of Christian community... experiencing the assurance of God's love through his people ...through a visit and a hug, through a card that makes you laugh, through a booklet of personal messages and scripture verses that add encouragement to the day. These and many other ways have reminded. Austin and our family know that we are truly blessed.
The tentative plan is to receive the plasma treatment today and tomorrow and possibly Saturday and hopefully he can soon take a day off of hanging out in the dialysis lab. There is some talk of moving to outpatient by the end of the week Austin's trying not to get his hopes up. :) Thank you for your continued prayers for complete healing.
Wednesday, July 28, 2010
July 28 - AM Post
Long talk with Doctor this morning about numbers and when we can expect to be dismissed from the hospital. No promises but IF daily treatments continue to produce the results they have been through Friday there is a chance of going home and then working the plan on an outpatient basis the following week. We are hopeful.
Our prayer concern today is that Austin's kidneys will return to full functioning with no long term damage. This is connected to his one lagging number of low hemoglobin or the production of red blood cells. Again, we are hopeful to see improvement through Friday.
Your many kind words, cards, thoughts, visits, and prayers are holding us all up in ways beyond our natural strengths and abilities. We can only say, THANK YOU! ritch
Our prayer concern today is that Austin's kidneys will return to full functioning with no long term damage. This is connected to his one lagging number of low hemoglobin or the production of red blood cells. Again, we are hopeful to see improvement through Friday.
Your many kind words, cards, thoughts, visits, and prayers are holding us all up in ways beyond our natural strengths and abilities. We can only say, THANK YOU! ritch
Tuesday, July 27, 2010
July 27 - PM Post
Long day. Veins are struggling with all the IV's to add extra blood products and meds - so much so that an IV had to be moved from his Austin's arm to the back of his left hand. Next IV will need to be what is called a PICC line which is an acronym for peripherally inserted central catheter; a long-term type that is inserted peripherally. Tonight, in addition to dinner, Austin is being fed a slow drip of magnesium - which is low.
Overall numbers are still moving in right direction. Ongoing physical prayer concerns: head aches, occasional high blood pressure, swelling of extremities, and low hemoglobin. Ongoing mental concerns: restlessness, anxiety, ability to hang in over the long haul, dealing with (sometimes) annoying (but really swell) parents . (thank God he can't see what I'm writing,) and of course, two words - hospital food!
Overall numbers are still moving in right direction. Ongoing physical prayer concerns: head aches, occasional high blood pressure, swelling of extremities, and low hemoglobin. Ongoing mental concerns: restlessness, anxiety, ability to hang in over the long haul, dealing with (sometimes) annoying (but really swell) parents . (thank God he can't see what I'm writing,) and of course, two words - hospital food!
July 27 - AM Post
Austin just got picked up for his 8th plasma treatment. His doctor noted this morning the encouraging change in the way Austin looks this morning from last Tuesday when he first met him in ICU. :) Austin continues to improve slowly but surely. His liver numbers were actually normal! :) His kidney functioning is improving, his platelet count improved on it's own without a blood transfusion yesterday. His hemoglobin stayed the same BUT it didn't drop so that's positive. It's also fun to see Austin's spirit return. He smiles on occasion and his dry sense of humor is back. He's still retaining quite abit of fluid so when he walks the halls he feels like he has a layer of jello on his legs and feet and stomach that he carries with him. An interesting sensation.
Again the doctor says we will just continue the treatment daily until all numbers are normal. Thank you for your continued prayers and also for the encouraging words that have been shared. We are continually reminded of God's love and the blessing of community.
Again the doctor says we will just continue the treatment daily until all numbers are normal. Thank you for your continued prayers and also for the encouraging words that have been shared. We are continually reminded of God's love and the blessing of community.
Monday, July 26, 2010
July 26 - PM Post
For our post tonight I asked Austin if he wanted to share anything...here is what he said...
"This past couple of weeks have been a whirlwind of emotions, unanswered questions, fear, doubt and pain. I have struggled to have a positive outlook and to keep on going. It's hard to be cooped up in a hospital. I used to ask, 'why am I in the hospital?' I was frustrated. Now I am realizing just how sick I really was and that I needed to be here - even if I would rather be any other place but here. I also realized just how fragile life is and that we cannot take even one day for granted. It's definitely evident that I am not alone. Thanks for your continued support and prayers!"
"This past couple of weeks have been a whirlwind of emotions, unanswered questions, fear, doubt and pain. I have struggled to have a positive outlook and to keep on going. It's hard to be cooped up in a hospital. I used to ask, 'why am I in the hospital?' I was frustrated. Now I am realizing just how sick I really was and that I needed to be here - even if I would rather be any other place but here. I also realized just how fragile life is and that we cannot take even one day for granted. It's definitely evident that I am not alone. Thanks for your continued support and prayers!"
July 26 - AM Post
It was great to arrive at the hospital this morning to find Austin standing in his bathroom, brushing his teeth. He is trying to be as independent as possible and to take control of his routine as much as he can so putting on some new shorts and brushing his teeth before he's wheeled anywhere or poked and prodded feels great to him. :) His kidney doctor came in early this morning to say that his levels continue to be improving slowly which he is encouraged by. His hemoglobin continues to lag behind so they will give blood transfusions as needed. His platelet counts are slowly rising. Austin grilled him about how long he would be needing his catheter in his shoulder area because he really didn't want to go back to work at Lowes with this thing sticking out. :) The doctor just smiled and encouraged him not to worry about it and just work on building his strength by eating and trying to walk around the halls.
He went down for his 7th plasma treatment this morning. The doctor said they will just keep doing them daily for now. The people who are caring for him during this time are just great. They've come to know him and they are our new good friends. Ritch is going back to work this week and I (Char) feel so grateful to have the time off to be at the hospital. Leslie and Tyler are heading to Marion today to unload their truck and settle into their new home but they are close enough to come and visit on Wednesday! :)
Thank you for your continued prayers and many acts of support and kindness. This morning in my quiet time I felt God reminding me I need to let go and trust Him. It's a continual learning for me ... to truly trust God without trying to remind Him what I think would be best or what I believe Austin needs. My cousin Brian reminded me that God loves Austin even more than I do. :) So I will trust Him.
He went down for his 7th plasma treatment this morning. The doctor said they will just keep doing them daily for now. The people who are caring for him during this time are just great. They've come to know him and they are our new good friends. Ritch is going back to work this week and I (Char) feel so grateful to have the time off to be at the hospital. Leslie and Tyler are heading to Marion today to unload their truck and settle into their new home but they are close enough to come and visit on Wednesday! :)
Thank you for your continued prayers and many acts of support and kindness. This morning in my quiet time I felt God reminding me I need to let go and trust Him. It's a continual learning for me ... to truly trust God without trying to remind Him what I think would be best or what I believe Austin needs. My cousin Brian reminded me that God loves Austin even more than I do. :) So I will trust Him.
Sunday, July 25, 2010
July 25 - PM Post
Leslie and Tyler arrived this afternoon and we got permission to take Austin on a little wheel chair ride outside to get some fresh air. We hit a gravel trail next to a private lake beside the hospital and could have used 4 wheel drive to get through several washouts from last Friday's thunderstorm. Nice to smell the fresh air and get a little sun.
Plasma treatment went well but hemoglobin is still very low so Austin will be receiving two more units of blood this evening which, unfortunately, means being hooked to an IV for another 4 hours after already spending 4 hours on his back with plasmapheresis. Yet, we are so thankful for all the resources here to nurture the body back to health.
Another plasma treatment is scheduled for tomorrow morning as they continue on a very aggressive approach to kicking the toxins still in the bloodstream. He's been able to keep his food down a second day although he doesn't have a strong appetite and he's not totally excited about hospital food. :) Today he's feeling weary of the journey so we continue to pray for him to have peace and patience.
Plasma treatment went well but hemoglobin is still very low so Austin will be receiving two more units of blood this evening which, unfortunately, means being hooked to an IV for another 4 hours after already spending 4 hours on his back with plasmapheresis. Yet, we are so thankful for all the resources here to nurture the body back to health.
Another plasma treatment is scheduled for tomorrow morning as they continue on a very aggressive approach to kicking the toxins still in the bloodstream. He's been able to keep his food down a second day although he doesn't have a strong appetite and he's not totally excited about hospital food. :) Today he's feeling weary of the journey so we continue to pray for him to have peace and patience.
July 25 - AM Post
Twelve days and counting. Doctor's report this morning confirmed that plasma treatments are continuing to have a positive affect on blood count and organ functioning. Kidney functioning and platelet count continue to improve slowly. One area of concern is low hemoglobin which indicates residual toxins still in the blood system. Austin will continue to receive daily plasmapheresis until normal levels are achieved. He had a more restful night with the help of anti anxiety medication and tylenol. He continues to be fearful of eating but as he has success keeping things down, we hope he can relax and try different things.
Our verse for the day is taken from words of encouragement from Roger, Rhonda, and Amanda Yoder. Psalm 62:8 says "Trust in him at all times, O people; pour out your heart before him; God is a refuge for us." When we talked about this verse with Austin he shared appreciation for these words, but also the difficulty of believing them when in the heart of the struggle. We pray that the reality of these words of promise will take root today and in the days to come.
We are excited that Leslie and Tyler will be arriving sometime later today as they are moving back to Marion, IN. Austin is excited to see them. Austin is also open to visitors depending on how he is feeling and his treatment schedule. If wanting to visit, check in with Char by texting 574.312.0801. Thank you for your continued prayers!
Our verse for the day is taken from words of encouragement from Roger, Rhonda, and Amanda Yoder. Psalm 62:8 says "Trust in him at all times, O people; pour out your heart before him; God is a refuge for us." When we talked about this verse with Austin he shared appreciation for these words, but also the difficulty of believing them when in the heart of the struggle. We pray that the reality of these words of promise will take root today and in the days to come.
We are excited that Leslie and Tyler will be arriving sometime later today as they are moving back to Marion, IN. Austin is excited to see them. Austin is also open to visitors depending on how he is feeling and his treatment schedule. If wanting to visit, check in with Char by texting 574.312.0801. Thank you for your continued prayers!
Saturday, July 24, 2010
July 24 - PM Post
This evening Austin is doing his assigned walk around the halls with Ritch at his side while I (Char) am writing this. We feel grateful to be able to share some positive updates today as we celebrate 1) He is no longer connected to a catheter and has been able to go to the bathroom on his own (the threat of another small tube needing to be inserted was quite motivating :). 2) He has eaten real food at lunch and at supper and was able to keep it down! 3) He has strolled the halls 4 times today without falling or mooning anyone. 4) The doctor has prescribed some anti-anxiety medication that helps him relax and rest when he starts to feel agitated.
He is weak and tires easily but it feels so good to be able to get out of bed and walk around. He will be having his 6th plasma treatment tomorrow morning. We are grateful for the kind people who work with this treatment as they don't usually work on Sunday but are making a special effort to continue to build on Austin's positive report today.
Thank you for continuing to lift us up in prayer. We feel the prayers and the support from all over the US and Canada. We are humbled and blessed.
He is weak and tires easily but it feels so good to be able to get out of bed and walk around. He will be having his 6th plasma treatment tomorrow morning. We are grateful for the kind people who work with this treatment as they don't usually work on Sunday but are making a special effort to continue to build on Austin's positive report today.
Thank you for continuing to lift us up in prayer. We feel the prayers and the support from all over the US and Canada. We are humbled and blessed.
July 24 - AM Post
Austin's prolonged illness has made us ever more aware of our need for and dependence on God. Because it is difficult for us to find the words to pray, we have decided that praying words of scripture is a way for us to center our hearts and thoughts, as well as a way to listen to what God is saying/teaching us. Here's the verse for today.In you, O Lord, I seek refuge; do not let me be put to shame; in your righteousness deliver me. Incline your ear to me; rescue me speedily. Be a rock of refuge for me, a strong fortress to save me. Psalm 31:1-2
Austin had a rough night including vomiting his dinner. He has become quite anxious and discouraged. I (Ritch) arrived at the hospital by 7:20am to learn that they would be doing the plasmapheresis in 10 minutes. The nurses suggested he eat something before the treatment, which he tried and then vomited again. Discouragement.
Once in the room where the transfer takes place we were able to talk with his main doctor. We were both feeling down until we heard his report from the morning blood tests. There was improvement in all levels including kidney and liver functioning, as well as platelet count - the first time this number has turned around. Other good news included that his catheter (bladder) will be taken out this afternoon.
After treatment today, the plan is to balance times of rest with frequent walking excursions in the hall and trying to eat again very, very, very slowly. As you are aware of the stylish dimensions of hospital gowns, maybe we need to register a prayer concern that no one will be overly traumatized by walk by "moonings." Char and I are planning to alternate spending nights at the hospital for the next few until Austin has worked through some of the anxiety issues. Thanks for your care, concern, prayers, and friendship.
Austin had a rough night including vomiting his dinner. He has become quite anxious and discouraged. I (Ritch) arrived at the hospital by 7:20am to learn that they would be doing the plasmapheresis in 10 minutes. The nurses suggested he eat something before the treatment, which he tried and then vomited again. Discouragement.
Once in the room where the transfer takes place we were able to talk with his main doctor. We were both feeling down until we heard his report from the morning blood tests. There was improvement in all levels including kidney and liver functioning, as well as platelet count - the first time this number has turned around. Other good news included that his catheter (bladder) will be taken out this afternoon.
After treatment today, the plan is to balance times of rest with frequent walking excursions in the hall and trying to eat again very, very, very slowly. As you are aware of the stylish dimensions of hospital gowns, maybe we need to register a prayer concern that no one will be overly traumatized by walk by "moonings." Char and I are planning to alternate spending nights at the hospital for the next few until Austin has worked through some of the anxiety issues. Thanks for your care, concern, prayers, and friendship.
Friday, July 23, 2010
July 23 - PM Post
Big day. Two blood transfusions, surgical procedure to install jugular catheter, and another plasma transfer. Things got started at 8:15am and Austin didn't return to his room until 5:00pm. Char and I joined him back in the room for dinner where we saw him chew a piece of toast, the first thing of any substance since July 13. Small bites. Small steps.
We are hanging out tonight and planning on watching a movie together. Austin wants to give a shout out to all of you - "Thanks for your prayer and support...it means more than you know."
We are hanging out tonight and planning on watching a movie together. Austin wants to give a shout out to all of you - "Thanks for your prayer and support...it means more than you know."
July 23 - AM Post
Austin did not have a very restful night and the doctors shared test results this morning that hemoglobin and potassium were both down. He received a unit of blood and will have a catheter surgically install in his internal jugular (near collarbone) which will be used for next plasmapheresis. His next treatment will take place this afternoon.
Overall, he is feeling a bit dizzy and weak because of his blood count. It is also becoming increasingly difficult to adjust to the reality that this is going to be one long journey as he questioned doctors this morning as to why he is not getting any better.
We do see answered prayer as there are signs of healing in his digestive system and colon. This is reflected in the doctor's opening up of his diet to eat whatever he wants. Another thing that Austin is more that ready to get rid of is the catheter for the bladder which will be removed by tomorrow if things continue to improve as they have been. Doctors have also shared that "Austin is nearing the top of the hill" and we should be seeing improved blood count numbers in the next 48 hours.
For ongoing prayer, one of the greatest concerns is kidney functioning which is still very low. Also, pray that the plasmapheresis will help his blood count to move toward normal. Char and I recognize that many of you have (either personally or with your children) walked difficult journeys with health related issues. Pray that we can also remain strong and focused on the ever present grace and strength of God.
Overall, he is feeling a bit dizzy and weak because of his blood count. It is also becoming increasingly difficult to adjust to the reality that this is going to be one long journey as he questioned doctors this morning as to why he is not getting any better.
We do see answered prayer as there are signs of healing in his digestive system and colon. This is reflected in the doctor's opening up of his diet to eat whatever he wants. Another thing that Austin is more that ready to get rid of is the catheter for the bladder which will be removed by tomorrow if things continue to improve as they have been. Doctors have also shared that "Austin is nearing the top of the hill" and we should be seeing improved blood count numbers in the next 48 hours.
For ongoing prayer, one of the greatest concerns is kidney functioning which is still very low. Also, pray that the plasmapheresis will help his blood count to move toward normal. Char and I recognize that many of you have (either personally or with your children) walked difficult journeys with health related issues. Pray that we can also remain strong and focused on the ever present grace and strength of God.
Thursday, July 22, 2010
July 22 - PM Post
Tonight we are nearing the end of Austin's third plasmapheresis. It has been another long day but there is good news tonight. Following the treatment they will be removing the femoral port (used for the procedure) which will mean much more freedom to move. In addition, we just got word that later this evening he will be transferred out of ICU to the Renal Unit which comes with a nicer room and a reprieve from the constant noise and activity he has been experiencing.
Austin is more than ready to increase his movement - in more ways than one (metaphorically and literally) and we offer this as a very practical prayer concern - that "all systems are go" by the morning.
Tomorrow morning a new port will be installed for the plasmapherisis with treatments continuing daily until the doctors see the progress needed. We have been reading blogposts and facebook messages to Austin each day and they provide a wonderful source of encouragement and support.
Austin is more than ready to increase his movement - in more ways than one (metaphorically and literally) and we offer this as a very practical prayer concern - that "all systems are go" by the morning.
Tomorrow morning a new port will be installed for the plasmapherisis with treatments continuing daily until the doctors see the progress needed. We have been reading blogposts and facebook messages to Austin each day and they provide a wonderful source of encouragement and support.
July 22 - am post
The doctor met us this morning to discuss the latest test results. The blood count numbers revealed platelets about the same, with hemoglobin dropping slightly. Kidney functioning was also slightly worse but the rate of decline was slowing. Overall, the doctor feels we are reaching a point where the treatments will begin to reverse the blood count numbers and kidney functioning in a positive direction. It feels like we are still working our way uphill in this battle.
Austin will have his third plasma transfer later this morning, and one point of good news is that he will then have the port removed from his leg which will mean the freedom to move around rather than remaining flat on his back 24/7. With the immobility over the last two days it has been difficult to get ride of fluid which was led to a distended abdomen which has been very uncomfortable.
We continue to hold on to your prayers and the many expressions of kindness as we walk this long road. We ask for prayer specifically that the third treatment today will provide a "tipping point" toward positive results and the road to recovery.
Austin will have his third plasma transfer later this morning, and one point of good news is that he will then have the port removed from his leg which will mean the freedom to move around rather than remaining flat on his back 24/7. With the immobility over the last two days it has been difficult to get ride of fluid which was led to a distended abdomen which has been very uncomfortable.
We continue to hold on to your prayers and the many expressions of kindness as we walk this long road. We ask for prayer specifically that the third treatment today will provide a "tipping point" toward positive results and the road to recovery.
Wednesday, July 21, 2010
July 21 - Evening Update
Two small but good signs today include; Keeping down a liquid diet all three meals! (not so yummy but a great step) And word from "the plumbing doctor" that no extra measures will be needed to jump-start the urinary tract. Both are small steps but seem like giant leaps to us.
In spite of the difficult situation and testing of patience Austin still has not lost his sense of humor. He shared this morning with a nurse, "I have so many tubes hooked up to me I feel like an inflatable." In the afternoon he also gave his mom some grief about her nerdyness which brought smiles to us all.
For now, we wait for tomorrow mornings blood draw to see where things are at. Thanks for your continued prayers!
In spite of the difficult situation and testing of patience Austin still has not lost his sense of humor. He shared this morning with a nurse, "I have so many tubes hooked up to me I feel like an inflatable." In the afternoon he also gave his mom some grief about her nerdyness which brought smiles to us all.
For now, we wait for tomorrow mornings blood draw to see where things are at. Thanks for your continued prayers!
July 21 - Noon update
Austin is currently undergoing his second plasma treatment. Within several hours he'll receives 4700cc of plasma through a port they inserted into his groin. Because of this port, he's unable to move around and is bedridden for the next several days. The risk of infection around the port site is high, and so far it has been painful. We continue to pray that all goes smoothly so that he can receive the plasma his body so desperately needs. The hope would be that the plasma transfer will enable his platelet count to increase enough to move the port higher.
He has been pumped with many fluids in the past 24 hours, but has been unable to urinate. Because of this, a catheter was inserted this morning but for whatever reason, his bladder isn't draining. A nurse was able to send something into the tube to release some of the urine, but not much. In the mean time, it's very uncomfortable. They're sending in a specialist this afternoon to see what he can do. On a positive note, the nurse was pleased to see that Austin is indeed still producing urine, which is a good sign. Austin's kidney function continues to be a big concern, so depending on what the next 24 hours hold, dialysis may be necessary. They're sending in a kidney specialist this afternoon as well.
Though his body is tired, Austin is still fighting. We are delighted that he was able to keep down jello and a fruit pop this morning, along with some 7UP. This is progress and the first food intake he's had in a week and a half. He enjoyed it. :) We enjoyed it. It's something to celebrate.
We're currently working on getting a DVD player hooked up to the plasma TV he has in his room. Movies help pass the time as he's confined to his bed and waiting. We've been blessed by the incredible medical staff and excellent facilities at Saint Joe. We feel even more blessed by the incredible support network of friends and family all over the country, sending their love through emails, texts, phone messages and blog post. Thank you for joining us so readily in this difficult time. We continue to feel your prayers and support across the miles and we have no doubt that God is here in this place. Please continue to lift Austin up. The next 24 hours are crucial. Because of this, visitation is still discouraged. Austin is in a very vulnerable place right now, so they want to keep him as isolated as possible. In the mean time, we watch, and wait, and pray.
I was talking to Mom this morning on the phone and we both realized we've been singing the same, rather ancient Twila Paris melody in the past several days as we struggle to understand and lift Austin to Lord. I'd like to end this post with those words; I will trust you.
Sometimes my little heart can't understand, what's in your will, or what's in plan.
So many times I'm tempted to ask you why.
But I could never forget it for long, Lord what you do, could not be wrong.
So I believe you, even when I must cry...
Do I trust you Lord, does the river flow?
Do I trust you Lord, does the north wind blow?
You can see my heart, you can read my mind, and you've got to know I would rather die,
than to loose my faith in the one I love
Do I trust you Lord?
Do I trust you?
I will trust you Lord, when I don't know why
I will trust you Lord till the day I die.
I will trust you Lord when I'm blind with pain.
You were God before and you'll never change.
I will trust you.
I will trust you.
Yes Lord. We do trust you. We praise you because Austin IS fearfully and wonderfully made and we know you're holding him in the palm of your hand. Lord we do believe, only help our unbelief.
He has been pumped with many fluids in the past 24 hours, but has been unable to urinate. Because of this, a catheter was inserted this morning but for whatever reason, his bladder isn't draining. A nurse was able to send something into the tube to release some of the urine, but not much. In the mean time, it's very uncomfortable. They're sending in a specialist this afternoon to see what he can do. On a positive note, the nurse was pleased to see that Austin is indeed still producing urine, which is a good sign. Austin's kidney function continues to be a big concern, so depending on what the next 24 hours hold, dialysis may be necessary. They're sending in a kidney specialist this afternoon as well.
Though his body is tired, Austin is still fighting. We are delighted that he was able to keep down jello and a fruit pop this morning, along with some 7UP. This is progress and the first food intake he's had in a week and a half. He enjoyed it. :) We enjoyed it. It's something to celebrate.
We're currently working on getting a DVD player hooked up to the plasma TV he has in his room. Movies help pass the time as he's confined to his bed and waiting. We've been blessed by the incredible medical staff and excellent facilities at Saint Joe. We feel even more blessed by the incredible support network of friends and family all over the country, sending their love through emails, texts, phone messages and blog post. Thank you for joining us so readily in this difficult time. We continue to feel your prayers and support across the miles and we have no doubt that God is here in this place. Please continue to lift Austin up. The next 24 hours are crucial. Because of this, visitation is still discouraged. Austin is in a very vulnerable place right now, so they want to keep him as isolated as possible. In the mean time, we watch, and wait, and pray.
I was talking to Mom this morning on the phone and we both realized we've been singing the same, rather ancient Twila Paris melody in the past several days as we struggle to understand and lift Austin to Lord. I'd like to end this post with those words; I will trust you.
Sometimes my little heart can't understand, what's in your will, or what's in plan.
So many times I'm tempted to ask you why.
But I could never forget it for long, Lord what you do, could not be wrong.
So I believe you, even when I must cry...
Do I trust you Lord, does the river flow?
Do I trust you Lord, does the north wind blow?
You can see my heart, you can read my mind, and you've got to know I would rather die,
than to loose my faith in the one I love
Do I trust you Lord?
Do I trust you?
I will trust you Lord, when I don't know why
I will trust you Lord till the day I die.
I will trust you Lord when I'm blind with pain.
You were God before and you'll never change.
I will trust you.
I will trust you.
Yes Lord. We do trust you. We praise you because Austin IS fearfully and wonderfully made and we know you're holding him in the palm of your hand. Lord we do believe, only help our unbelief.
July 21, am update
After his first plasma transfer, which wasn't completed until after 11p.m. last night, Austin's overall condition has not improved. His kidney functioning has actually worsened. Doctors have shared that it is not unusual because it often takes 24 hours for full effects of the treatment to take place. Overall, his blood count is not horrible, but needs to improve over the next 48 hours.
The greatest concern at this point is the functioning of his kidneys. Most likely he will have to undergo the not so pleasant process of a catheter to drain his bladder. A major prayer concern is that his kidneys begin to respond to the plasma treatments. If kidney function continues to decline we may be looking at at least temporary dialysis - which would not be pleasant.
One sign of good news this morning is Austin's desire to try jello and liquids, which he has been too nauseated to take since entering the hospital. We continue to face each new day with the knowledge that God is faithful and a gratefulness for all who are walking this journey with us.
The greatest concern at this point is the functioning of his kidneys. Most likely he will have to undergo the not so pleasant process of a catheter to drain his bladder. A major prayer concern is that his kidneys begin to respond to the plasma treatments. If kidney function continues to decline we may be looking at at least temporary dialysis - which would not be pleasant.
One sign of good news this morning is Austin's desire to try jello and liquids, which he has been too nauseated to take since entering the hospital. We continue to face each new day with the knowledge that God is faithful and a gratefulness for all who are walking this journey with us.
Tuesday, July 20, 2010
The journey
Friends & Family,
As many of you may already know, Austin is currently in the ICU at Saint Joe Regional Medical Center in Mishawaka, IN.
The journey began on July 11, when Austin began experiencing flu-like symptoms which continued to get worse throughout the next two days. By Tuesday, July 13 he had to leave work early due to the continued worsening of his symptoms. By Wednesday, July 14, he was experiencing severe abdominal pain, and after a doctor visit and two trips to the emergency room at Goshen Hospital, he was admitted and placed on IV's.
Much to our dismay, Austin's sickness continued to get worse. A colonoscopy was ordered and performed on Saturday which determined he had ulcerated colitis. Doctors immediately prescribed several antibiotics and pain medications over the next few days to treat this condition. However, instead of improving, his condition continued to get worse to the point where he couldn't keep any foods or liquids down. Blood tests were ordered and he was moved to the ICU at Goshen hospital Monday morning. The ICU Doctor at Goshen then brought in a consultation of other doctors, specialists to help provide some insight into Austin's continuing worsening symptoms.
It was determined this morning, July 20, that Austin's body has taken on toxicity in the blood system that originated with some form of bacteria that he has been dealing with from the beginning (most likely the culprit of the colitis). The condition he is currently experiencing is quite rare and requires a series of plasma transfusions in order to remove the toxicity from his blood that has been attacking his liver and kidneys.
He was transported to Saint Joe Regional Medical Center via ambulance this morning. His first plasma exchange treatment starts this evening. The specialist handling Austin's care believes this to be the best course of action at this point. Our hope is that this plasma transfusion will provide a much needed chance for Austin's body to begin the process of recovery which will take as long as needed.
As a family, we appreciate your continued prayers as we walk this journey with Austin. Though it doesn't always make sense, we are reminded that God is still sovereign - even over this - and he is needed more than ever.
As many of you may already know, Austin is currently in the ICU at Saint Joe Regional Medical Center in Mishawaka, IN.
The journey began on July 11, when Austin began experiencing flu-like symptoms which continued to get worse throughout the next two days. By Tuesday, July 13 he had to leave work early due to the continued worsening of his symptoms. By Wednesday, July 14, he was experiencing severe abdominal pain, and after a doctor visit and two trips to the emergency room at Goshen Hospital, he was admitted and placed on IV's.
Much to our dismay, Austin's sickness continued to get worse. A colonoscopy was ordered and performed on Saturday which determined he had ulcerated colitis. Doctors immediately prescribed several antibiotics and pain medications over the next few days to treat this condition. However, instead of improving, his condition continued to get worse to the point where he couldn't keep any foods or liquids down. Blood tests were ordered and he was moved to the ICU at Goshen hospital Monday morning. The ICU Doctor at Goshen then brought in a consultation of other doctors, specialists to help provide some insight into Austin's continuing worsening symptoms.
It was determined this morning, July 20, that Austin's body has taken on toxicity in the blood system that originated with some form of bacteria that he has been dealing with from the beginning (most likely the culprit of the colitis). The condition he is currently experiencing is quite rare and requires a series of plasma transfusions in order to remove the toxicity from his blood that has been attacking his liver and kidneys.
He was transported to Saint Joe Regional Medical Center via ambulance this morning. His first plasma exchange treatment starts this evening. The specialist handling Austin's care believes this to be the best course of action at this point. Our hope is that this plasma transfusion will provide a much needed chance for Austin's body to begin the process of recovery which will take as long as needed.
As a family, we appreciate your continued prayers as we walk this journey with Austin. Though it doesn't always make sense, we are reminded that God is still sovereign - even over this - and he is needed more than ever.
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