So here is the basic info on The Red Cross blood drive, it is on October 15th at Goshen College for those in the area, however everyone does not need to give on this day if it does not work for you. Any time you give is helping other people. Also if you cannot give blood, you can donate in other ways, money to buy blood, volunteering at blood drives if you want to help out. If you do donate blood, time or money, thanks and know that you are saving lives.
Austin
Sunday, October 3, 2010
Thursday, September 30, 2010
AUSTIN GIVES BACK PRESS RELEASE
PRESS RELEASE
Title: Local Student Sponsors Plasma & Blood Drive After Rare Life-threatening Illness
On Monday, July 12 – two day after being a groomsman in his sister’s wedding, Austin Hochstelter, a 22-year-old Goshen College student and Goshen resident, began a journey into a life-threatening illness, which began with flu-like symptoms. By Tuesday, July 13, Austin left his summer job at Lowe’s early due to nausea and by the next day, severe abdominal pain led to a doctor visit and two trips to the emergency room at Goshen Hospital, where he was admitted and placed on IV's for observation.
As Austin’s condition continued to deteriorate and doctors were searching for answers, a colonoscopy and series of blood tests were ordered. On Monday, July 19, Austin was moved to the ICU at Goshen hospital where a team of doctors and specialists came to the same diagnosis - Austin had contracted a rare blood disease HUS (Hemolytic Uremic Syndrome) and/or TTP (Thrombotic Thrombocytopenic Purpura) most likely from e coli bacteria that traveled through his digestive system and into his bloodstream. HUS/TTP destroys healthy red blood cells and causes extensive microscopic clotting to form in small blood vessels throughout the body and, if not treated, destroys the kidneys and brain. Austin and his parents were told that the only remedy for this condition is a unique blood treatment called Plasmapheresis (a procedure where a person’s blood is pumped out of their body, cells and plasma are separated, then cells are re-combined with fresh plasma - from donors, and pumped back into the body.)
This procedure is performed at only two locations in the state of Indiana – IU Medical Center in Indianapolis and Saint Joe Regional Medical Center, Mishawaka. On the afternoon of July 19, Austin was transferred to Saint Joe by ambulance where he was admitted to the ICU and began receiving daily Plasmapheresis treatments that required 14 to 18 bags of plasma each treatment. Slowly, Austin’s body began responding to the plasma treatments along with additional units of blood and blood products which he received daily during his hospital stay until July 31. Austin continued plasmapheresis on an outpatient basis through August 26 while gradually decreasing from daily treatments to two to three times per week. Currently, Austin’s blood numbers have normalized and he is enrolled as a student in the fall semester at Goshen College, with bi-weekly blood tests to monitor his progress toward a full recovery.
Because of his gratitude, after receiving 8 units of blood and over 300 units of plasma, Austin, along with his family, are dedicating a plasma and blood drive “AUSTIN GIVES BACK” on October 15 at Goshen College with a goal of replenishing all the plasma he was given, as well as to provide an additional 100 units of blood. We encourage everyone interesting in donating blood or plasma to check with your local Red Cross on times and locations if you cannot make it to Goshen College on October 15. Anytime the week of October 10 to 15 would be great, and we would love to know if you gave. You could let us know either by posting to this blog or emailing ritch@leadership3.org. Thanks for your support and for helping us give thanks for all that we received to help Austin recover from this illness. ritch
Title: Local Student Sponsors Plasma & Blood Drive After Rare Life-threatening Illness
On Monday, July 12 – two day after being a groomsman in his sister’s wedding, Austin Hochstelter, a 22-year-old Goshen College student and Goshen resident, began a journey into a life-threatening illness, which began with flu-like symptoms. By Tuesday, July 13, Austin left his summer job at Lowe’s early due to nausea and by the next day, severe abdominal pain led to a doctor visit and two trips to the emergency room at Goshen Hospital, where he was admitted and placed on IV's for observation.
As Austin’s condition continued to deteriorate and doctors were searching for answers, a colonoscopy and series of blood tests were ordered. On Monday, July 19, Austin was moved to the ICU at Goshen hospital where a team of doctors and specialists came to the same diagnosis - Austin had contracted a rare blood disease HUS (Hemolytic Uremic Syndrome) and/or TTP (Thrombotic Thrombocytopenic Purpura) most likely from e coli bacteria that traveled through his digestive system and into his bloodstream. HUS/TTP destroys healthy red blood cells and causes extensive microscopic clotting to form in small blood vessels throughout the body and, if not treated, destroys the kidneys and brain. Austin and his parents were told that the only remedy for this condition is a unique blood treatment called Plasmapheresis (a procedure where a person’s blood is pumped out of their body, cells and plasma are separated, then cells are re-combined with fresh plasma - from donors, and pumped back into the body.)
This procedure is performed at only two locations in the state of Indiana – IU Medical Center in Indianapolis and Saint Joe Regional Medical Center, Mishawaka. On the afternoon of July 19, Austin was transferred to Saint Joe by ambulance where he was admitted to the ICU and began receiving daily Plasmapheresis treatments that required 14 to 18 bags of plasma each treatment. Slowly, Austin’s body began responding to the plasma treatments along with additional units of blood and blood products which he received daily during his hospital stay until July 31. Austin continued plasmapheresis on an outpatient basis through August 26 while gradually decreasing from daily treatments to two to three times per week. Currently, Austin’s blood numbers have normalized and he is enrolled as a student in the fall semester at Goshen College, with bi-weekly blood tests to monitor his progress toward a full recovery.
Because of his gratitude, after receiving 8 units of blood and over 300 units of plasma, Austin, along with his family, are dedicating a plasma and blood drive “AUSTIN GIVES BACK” on October 15 at Goshen College with a goal of replenishing all the plasma he was given, as well as to provide an additional 100 units of blood. We encourage everyone interesting in donating blood or plasma to check with your local Red Cross on times and locations if you cannot make it to Goshen College on October 15. Anytime the week of October 10 to 15 would be great, and we would love to know if you gave. You could let us know either by posting to this blog or emailing ritch@leadership3.org. Thanks for your support and for helping us give thanks for all that we received to help Austin recover from this illness. ritch
Wednesday, September 29, 2010
September 29th, 2010
Hello Everyone, I apologize for the delayed update on how I am doing. My recovery is continuing to go well. I have been to the cancer center in Goshen two times to get labs drawn and both times my blood tests were positive. This week when I got my labs drawn my levels were mostly all improved. My white blood cells level is at 2.9 which is the highest it has been in a while, I also had an increase in granulocytes, which are immature white blood cells so that is very good as well. My hemoglobin was at 12.1, that is an increase as well. My platelets went down a little bit but are still in the normal range. Things are still not where they are supposed to be but they are moving in the right direction which is encouraging. It is rather crazy thinking that a little over a month from today is when I got my catheter out, it seems like it has been a lot longer than that and I am continually grateful to be where I am today and as healthy as I am today.
Thanks for your continued support
Austin
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Thanks for your continued support
Austin
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Saturday, September 4, 2010
September 4, 2010
I was thinking today how fortunate I am to be where I am now in my recovery process, it has not even been two months since I started to get sick and I have came a long way. I am very thankful for the way my recovery has went, I know it could have went a lot differently. I have just begun another year of college with a new outlook on life, one that embraces each day of life I am given with a lot more awareness of what a blessing my health is.
Thanks to everyone for your continued support
Like my dad said, the blood and plasma drive details will be up on the blog soon
Austin
Thanks to everyone for your continued support
Like my dad said, the blood and plasma drive details will be up on the blog soon
Austin
Wednesday, September 1, 2010
September 1 Post
Bone marrow test results were normal...cause for celebration! The plan for now is by-weekly blood tests to monitor levels. We continue to ask for prayer for Austin's full recovery as he deals with some lingering digestive issues as well as low energy level. At the end of the day, we will never know the cause of this whole ordeal, but we have been reminded that all of life is gift and how important it is to live each day to the fullest.
Austin is currently enrolled full-time in the fall semester at Goshen College with classes starting this week. Char and I are working with friends on details and setting a date for "Austin Gives Back" plasma and blood drive sometime in October. We will try to get this nailed down in the next week and will post the details on the blog. Ritch
Austin is currently enrolled full-time in the fall semester at Goshen College with classes starting this week. Char and I are working with friends on details and setting a date for "Austin Gives Back" plasma and blood drive sometime in October. We will try to get this nailed down in the next week and will post the details on the blog. Ritch
Friday, August 27, 2010
August 27 Post
Halleluiah! The catheter is out!
We showed up for blood work this morning at Saint Joe Med Center and as we were waiting Austin contemplated the possibility that his numbers had lapsed and that he would need another treatment, or at least would be sporting the pheresis catheter over another weekend.
The doctor met with us by 9:30am with the opening question, "Are you ready to get that thing out?" Austin's labs indicated sustainability with a few increases, which means "goodbye plasmapheresis!" I think Austin was in shock because all he could say is "really?"
The process for removal wan't nearly as invasive as when it was put in. We were sent to the nephrology center near the hospital and were on our way by 11:00am. Austin needs to be careful over the next three days as the opening heals that the catheter inhabited for over a month. His first possibility for a shower is Sunday morning. Kind of gives a ring to Tony Campolo's message "It's Friday - but Sunday's Comin'!"
We have a followup appointment in Goshen to review results of bone marrow biopsy (which we heard looked fine) and most probably set up a schedule for blood work to ensure the healing process stays on track.
As I shared in the last post, stay tuned for information about a blood/plasma drive, and thank you, thank you, thank you to everyone - doctors, nurses, family, and friends for your expertise, help, prayers and support over the last month! ritch
We showed up for blood work this morning at Saint Joe Med Center and as we were waiting Austin contemplated the possibility that his numbers had lapsed and that he would need another treatment, or at least would be sporting the pheresis catheter over another weekend.
The doctor met with us by 9:30am with the opening question, "Are you ready to get that thing out?" Austin's labs indicated sustainability with a few increases, which means "goodbye plasmapheresis!" I think Austin was in shock because all he could say is "really?"
The process for removal wan't nearly as invasive as when it was put in. We were sent to the nephrology center near the hospital and were on our way by 11:00am. Austin needs to be careful over the next three days as the opening heals that the catheter inhabited for over a month. His first possibility for a shower is Sunday morning. Kind of gives a ring to Tony Campolo's message "It's Friday - but Sunday's Comin'!"
We have a followup appointment in Goshen to review results of bone marrow biopsy (which we heard looked fine) and most probably set up a schedule for blood work to ensure the healing process stays on track.
As I shared in the last post, stay tuned for information about a blood/plasma drive, and thank you, thank you, thank you to everyone - doctors, nurses, family, and friends for your expertise, help, prayers and support over the last month! ritch
Tuesday, August 24, 2010
August 24 Post
Great news! We showed up at Saint Joe Hospital this morning and learned that several key blood count numbers not only sustained but improved! As the doctor started sharing the numbers I found myself doing fist pumps and saying "YES!" after every one. Even white blood cell count improved which is so great because Austin has been considered at high risk for infection. After labs we were sent home with the news that we won't need to return until Friday - with the possibility of removing Austin's pheresis catheter.
Char and I are rejoicing with the news - for this moment and day, while, as you can imagine, it's difficult for Austin to be optimistic since he has had to deal with so much bad news - and he is currently experiencing discomfort from yesterday's bone marrow biopsy. We thank God for answered prayer and continued strength for the journey, even as we anxiously await the results of the biopsy.
We continue express our thanks to everyone who has supported us on this mysterious and difficult journey. We also want to let you know that we are checking into the possibility of a plasma/blood drive "Austin Gives Back" to encourage everyone who would like to be a part of replenishing their local blood banks as a "THANK YOU!" for all that he has received that has truly been life-giving. We'll let you know what develops. ritch
Char and I are rejoicing with the news - for this moment and day, while, as you can imagine, it's difficult for Austin to be optimistic since he has had to deal with so much bad news - and he is currently experiencing discomfort from yesterday's bone marrow biopsy. We thank God for answered prayer and continued strength for the journey, even as we anxiously await the results of the biopsy.
We continue express our thanks to everyone who has supported us on this mysterious and difficult journey. We also want to let you know that we are checking into the possibility of a plasma/blood drive "Austin Gives Back" to encourage everyone who would like to be a part of replenishing their local blood banks as a "THANK YOU!" for all that he has received that has truly been life-giving. We'll let you know what develops. ritch
Monday, August 23, 2010
August 23, 2010
Hey Everyone, so I survived the bone marrow biopsy, thankfully without extensive pain. Now the wait begins to find out what the results are. I have an appointment next Tuesday, August 31st with the blood Dr. where I will find out what is going on hopefully. Meanwhile I will continue to go to the hospital for catheter care, blood analysis and possibly plasma treatments if necessary. Thanks for your continued thoughts and prayers.
Austin
Austin
Friday, August 20, 2010
August 20th, Post 2
Hey everyone, this is Austin, I wanted to give you my take on what happened today. The Dr.'s announcement about a possible change in my plasma treatments was news to me. Before today there was not even really a possibility to not have it. The Dr. is waiting to see what the results of the biopsy are, and could decide that my catheter could come out in the next few weeks which is huge. With the catheter out I will feel a lot better. It is yet another step of my recovery process that I look forward to immensely. I am rather nervous about the whole bone marrow biopsy, I am not a big fan of needles. I am truly hoping that the biopsy brings some clarity to what is going on inside my body and helps explain why my white blood cell and red blood cell counts are low. I am kind of weary of getting tests done, I feel like I have had just about every test on my blood that there is. One thing I have thought about lately is that I should not take for granted the care that I am getting and complain about it. As much as I do not enjoy hospitals, needles, doctors, medical care and all that goes with it, I have been truly blessed to even be able to receive care at hospitals with doctors that know what they are doing and nurses who care. Not to mention having health insurance, which is a rather contested issue in the U.S. today. This journey has been a rough one and has definitely tested me. Prayers for the biopsy would be appreciated and also for my catheter that I can put up with it as long as necessary and that nothing goes wrong with it, that would not be good. Also, my classes will start on August 30th, so that brings a new dynamic into the picture which is a little unsettling but I am still committed to trying school with hopes that my recovery continues. Here is a shout out to everyone who has prayed or done anything for me in the past several weeks, THANK YOU, your support has meant a lot.
August 20, 2010
Austin had his 21 plasma treatment this morning and was pleased to hear some new plans for next weeks schedule. The Dr. would like to move to taking blood first thing in the morning and if his blood levels haven't changed, he'll NOT have to have plasma treatment that day. Austin could get into that! :) The thought that he may someday in the near future have his catheter out and have a real shower brought a big smile to his face. Much depends on the results of the bone marrow biopsy which he will be having on Monday morning (August 23) at 9:30am.
We continue to pray for protection from any infection and God's peace to cover Austin throughout this unknown journey. We continue to feel your prayers. Thank you.
We continue to pray for protection from any infection and God's peace to cover Austin throughout this unknown journey. We continue to feel your prayers. Thank you.
Thursday, August 19, 2010
August 19 Post
Another step of the journey today as we met with Dr.Westbrook, a blood specialist, at the Goshen Cancer Center. Though most of Austin's blood numbers have moved into low-normal range, white blood cells remain dangerously low and doctors are looking for answers.
With more blood tests we left the hospital with a plan that includes a bone marrow biopsy to be scheduled sometime next week. We probably won't know the results of this test until another week. Plasma transfer is to continue until next Monday with another attempt to start weening down.
As we chase answers for low white count (and heightened risk of infection,) we all struggle with emotional and spiritual resolve, and Austin is physically groaning at the thought of yet another needle. No matter what, We know God's care and love is with us and each of you as we walk this walk. ritch
With more blood tests we left the hospital with a plan that includes a bone marrow biopsy to be scheduled sometime next week. We probably won't know the results of this test until another week. Plasma transfer is to continue until next Monday with another attempt to start weening down.
As we chase answers for low white count (and heightened risk of infection,) we all struggle with emotional and spiritual resolve, and Austin is physically groaning at the thought of yet another needle. No matter what, We know God's care and love is with us and each of you as we walk this walk. ritch
Monday, August 16, 2010
August 16, 2010
Sunday gave Austin a good break from giving blood after feeling like he gave a major donation on Saturday morning when he went for blood work requested before meeting with the blood specialist on Thursday. The tech that took his blood joked with him about having track marks ... that's a new one for him. :)
He bravely went through another treatment this morning. Today's blood work showed similar numbers to last Friday so at least those that are lagging didn't get farther behind. He will continue with treatment as planned three times this week and hopefully the Dr appointment on Thursday can further inform where to go from here.
Several prayer requests would be that Austin can continue to hang in there with his catheter...as time goes on, he is really bothered by it. Also that Austin would have a peace as he thinks about this health journey and college starting in two weeks. Thanks for your support and prayers.
He bravely went through another treatment this morning. Today's blood work showed similar numbers to last Friday so at least those that are lagging didn't get farther behind. He will continue with treatment as planned three times this week and hopefully the Dr appointment on Thursday can further inform where to go from here.
Several prayer requests would be that Austin can continue to hang in there with his catheter...as time goes on, he is really bothered by it. Also that Austin would have a peace as he thinks about this health journey and college starting in two weeks. Thanks for your support and prayers.
Friday, August 13, 2010
August 13, 2010
It was an early Friday morning with Austin leaving the house at 6:45 to head for plasma treatment in South Bend this morning. Austin does not like that his mom is a morning person and is actually happy at that time of the day. :) Along with the treatment the Dr. ordered lots more blood tests. His white blood cells, platelet count and hemoglobin continue to be low. Since we had last talked the Dr. was able to get hold of an expert in the plasma treatment field and also talked with a blood specialist. They do not believe that the falling white blood cell count is due to his treatment or a secondary response to his illness SO he is scheduled to see Dr. Westbrook, a blood specialist in Goshen next Thursday. She has ordered more blood tests which Austin specializes in these days. :)
Also because of his low count they are asking him to hang low and not be around alot of people or eat fresh fruits and vegetables for the time being. Right now he is planning to go back for treatment Monday, Wednesday and Friday of next week again. The journey feels long. We continue to pray for protection from infection, that Austin may not be bothered so much by his catheter and that even in the midst of this confusing time we can trust God to know what Austin needs. Thank you for your thoughts and prayers.
Also because of his low count they are asking him to hang low and not be around alot of people or eat fresh fruits and vegetables for the time being. Right now he is planning to go back for treatment Monday, Wednesday and Friday of next week again. The journey feels long. We continue to pray for protection from infection, that Austin may not be bothered so much by his catheter and that even in the midst of this confusing time we can trust God to know what Austin needs. Thank you for your thoughts and prayers.
Wednesday, August 11, 2010
August 11, 2010
In the last two days we have been reminded that things don't always turn out how you hope or even how you or the Dr. have planned. After Monday Austin was hopeful that he would only need one more treatment for the rest of the week on Thursday as the Dr. was working on weaning him down. He got a phone call by noon on Tuesday saying his morning blood work up at Goshen Hospital had indicated that his platelet count was dropping and he needed to come in at 7:30am the next day (Wed) for another treatment. So we headed to the hospital this morning for his 17th plasma treatment. The doctor met with us to talk further about new concerns from the blood work this week. He sees a pattern in both his platelets and his white blood cells that show significant dropping. The white blood cell issue is not a usual issue with this disease so the Dr. was contacting a blood specialist and he was also contacting the national plasma center for their input.
We're not sure what it all means but it leaves us feeling unsettled and aware that we need to continue to trust God as we really don't have control. Austin is working on coming to terms with letting go of his desire to return to work in the next several weeks and is now praying that he will be able to start school the end of August. His body and his mental state are tired right now.
Please continue to pray for him, for protection from infection or further illness, for the doctors to have wisdom to know how to continue treating him and for him to have a peace that is beyond human understanding. He will go in for treatment again on Friday. Thank you for continuing to lift us up.
We're not sure what it all means but it leaves us feeling unsettled and aware that we need to continue to trust God as we really don't have control. Austin is working on coming to terms with letting go of his desire to return to work in the next several weeks and is now praying that he will be able to start school the end of August. His body and his mental state are tired right now.
Please continue to pray for him, for protection from infection or further illness, for the doctors to have wisdom to know how to continue treating him and for him to have a peace that is beyond human understanding. He will go in for treatment again on Friday. Thank you for continuing to lift us up.
Monday, August 9, 2010
August 9 Post
Day started with blood work at Saint Joe Regional at 8am. Had to wait on labs and plasma so treatment didn't begin until 1pm. Didn't get home until around 4pm. All numbers continue to improve except for platelets and white blood cells. Hemoglobin actually went up on its own without any additional units of blood and Austin's weight went down again which means swelling is subsiding. As you can see, we have really had to learn how to read numbers with some needing to go down and others up as signs of healing.
The plan this week is for daily blood tests at Goshen Hospital and then back to Mishawaka on Thursday. Plasmapheresis on Thursday will depend on numbers, and the doctor's plan is to keep Austin's port in until Monday of next week - with the possibility of taking it out, which will be a day of rejoicing whenever it arrives.
We are all recognizing this week the mental toll for all of us, but especially Austin, who is experiencing increasing discomfort with the port. We are trying to gradually work on a plan that will help keep his spirits as well as his body on the road to healing. Returning to work by this weekend or early next week, with some restrictions, might be the best medicine - along with attending worship, which he was able to do last Sunday for the first time.
Pray that we will be wise in achieving the right balance as we work with Austin to begin adding work and activities back into his life. We also pray that this process will result in a complete victory over the toxins invaded his bloodstream so that there will be no future remission. Your love, faith, and prayers sustain us. Blessings and grace to each of you. ritch
The plan this week is for daily blood tests at Goshen Hospital and then back to Mishawaka on Thursday. Plasmapheresis on Thursday will depend on numbers, and the doctor's plan is to keep Austin's port in until Monday of next week - with the possibility of taking it out, which will be a day of rejoicing whenever it arrives.
We are all recognizing this week the mental toll for all of us, but especially Austin, who is experiencing increasing discomfort with the port. We are trying to gradually work on a plan that will help keep his spirits as well as his body on the road to healing. Returning to work by this weekend or early next week, with some restrictions, might be the best medicine - along with attending worship, which he was able to do last Sunday for the first time.
Pray that we will be wise in achieving the right balance as we work with Austin to begin adding work and activities back into his life. We also pray that this process will result in a complete victory over the toxins invaded his bloodstream so that there will be no future remission. Your love, faith, and prayers sustain us. Blessings and grace to each of you. ritch
Friday, August 6, 2010
August 6, 2010
We're celebrating that Austin has completed a week of outpatient treatment and is looking at having a TWO day break from going to the hospital or having his blood drawn. Yeah! He has been on the every other day plasma treatment regime for this week and we're very pleased that his numbers have continued to stablize, some even in the normal range! His hemoglobin and his white blood cell count continue to lag BUT today they didn't drop further behind. His swollen legs and ankles have also gone down as he dropped 16 pounds from Monday to Friday. :) Even though he is still frustrated by having a catheter in his chest and feeling like he has less muscle tone than his mother, we feel cautiously optimistic as we see some things returning to "normal".
Austin will meet with his doctor (who has been on vacation this week) on Monday morning to get his perspective on where we go from here. Austin is so ready to go back to work and just be normal so it's hard to be patient. Thank you for your many encouraging words and prayers. We continue to pray for complete healing and trust that God knows exactly what Austin needs.
Austin will meet with his doctor (who has been on vacation this week) on Monday morning to get his perspective on where we go from here. Austin is so ready to go back to work and just be normal so it's hard to be patient. Thank you for your many encouraging words and prayers. We continue to pray for complete healing and trust that God knows exactly what Austin needs.
Wednesday, August 4, 2010
August 4th/ P.M. Post
Hey Everyone, this is Austin, I wanted to personally thank you for all your prayers and support on my journey the past couple of weeks. I have been truly blessed to have had a support network like all of you. Today I had my 2nd day of outpatient care, getting my 14th plasmapheresis treatment. Yeah I know that seems like a lot, just to put it into perspective. Here is how one treatment breaks down, the first time I had a treatment I got around 17 bags of new plasma, it took around 2 and a half to 3 hours. As my treatments have continued the number of bags of plasma that I have needed have went down from 17, today I received 14 bags of plasma. So if I received around 14 bags of plasma each time, I have received approximately 196 bags, more likely it is closer to somewhere like 215. I heard about plasma donations before I got ill but now I am not only thankful for people who donate plasma I owe my life to people who do it. I do not think I will be able to donate plasma due to my illness but if I can donate blood I will and will certainly encourage others to do both because of the number of lives that can be saved through such a seemingly simple procedure, hey if you donate plasma, you can even make some money. Yesterday I went to my family doctor and got medicine for my stomach if I have cramps/unbearable pain, however I have not had to use it thankfully. My stomach has been doing ok since two days ago. Today I found out most of the things the doctors are looking at are doing pretty good. My hemoglobin remains around 8.2, which is still pretty low, making me rather tired pretty easily. My Magnesium is down as well even though I am on supplemental medicine. It appears as if my body is still struggling to produce enough red blood cells. I could use prayer for a positive attitude as my recovery continues. I also could use prayer to not worry about things I cannot control and to simply accept my reality as what it is and to not focus on what has went wrong or is going wrong. Prayer for my red blood cells and whatever is going on there would be appreciated as well.
Thanks again
Austin
Thanks again
Austin
Monday, August 2, 2010
August 2 Post - Outpatient Journey Continues
Long day at the hospital from 8am to 5pm. Blood test this morning revealed solid number for platelets and improved kidney functioning. Hemoglobin , magnesium, and LDH are still lagging. Austin's body is struggling to tolerate the ongoing plasmapheresis with a lot of fluid retention and generally feeling crappy.
Another point of discouragement is sudden onsets of extreme pain in his stomach which makes us fear that we still have a long way to go to heal the colonitis. Since he is now outpatient at Saint Joe we will need to redirect treatment for digestive issues back to our family doctor and Goshen Hospital. For Austin, it feels like being back at square one and it is very frustrating. The renal doctors at Saint Joe just keep saying that his body went through an extreme illness and it will just take time for everything to heal.
We feel the next two weeks will require much mental fortitude to fight through the treatment regimen when "feeling better" is still elusive. It seems the pheresis is doing it's job so our prayers now focus on the complete healing of Austin's digestive track.
Another point of discouragement is sudden onsets of extreme pain in his stomach which makes us fear that we still have a long way to go to heal the colonitis. Since he is now outpatient at Saint Joe we will need to redirect treatment for digestive issues back to our family doctor and Goshen Hospital. For Austin, it feels like being back at square one and it is very frustrating. The renal doctors at Saint Joe just keep saying that his body went through an extreme illness and it will just take time for everything to heal.
We feel the next two weeks will require much mental fortitude to fight through the treatment regimen when "feeling better" is still elusive. It seems the pheresis is doing it's job so our prayers now focus on the complete healing of Austin's digestive track.
Saturday, July 31, 2010
July 31 - AM Post
Sweet release! When I (Ritch) arrived this morning by 7:20am Austin was already packing his room. Something tells me he is ready to split this joint. He told me his stomach pain went away during the night and that he had had probably the most restful sleep since being admitted to the hospital.
The doctor came in shortly after to confirm that his blood numbers were in the normal range and that he would be going home. He was taken for another plasma treatment this morning followed by a magnesium drip IV which should mean he will be done by early afternoon.
The plan for next week is still quite intense with daily blood tests and a minimum of 3 treatments (more depending on numbers). This will mean arriving at the hospital by 8am for blood work, having plasma treatment 2 hours later, and probably getting out by 2pm. On the days when he doesn't get treatment we will go to Goshen Hospital for blood work. His condition will be monitored daily at least for the next two weeks.
We anticipate difficult days ahead as the road to recovering also includes nursing a colon that is still in the healing process. Char and I both have been shown how to take care of the perm-cap port that he will need to keep infection free - also means only sponge baths. As you can imagine, Austin leaves the hospital with fear of blood numbers dropping again or of eating something that will aggravate his system. He will need both physical and mental endurance as he works at regaining his health.
We have decided to continue this blog with periodic updates of Austin's recovery at least through next week. Our gratitude runs deep for love expressed and prayers offered.
God bless! Ritch
The doctor came in shortly after to confirm that his blood numbers were in the normal range and that he would be going home. He was taken for another plasma treatment this morning followed by a magnesium drip IV which should mean he will be done by early afternoon.
The plan for next week is still quite intense with daily blood tests and a minimum of 3 treatments (more depending on numbers). This will mean arriving at the hospital by 8am for blood work, having plasma treatment 2 hours later, and probably getting out by 2pm. On the days when he doesn't get treatment we will go to Goshen Hospital for blood work. His condition will be monitored daily at least for the next two weeks.
We anticipate difficult days ahead as the road to recovering also includes nursing a colon that is still in the healing process. Char and I both have been shown how to take care of the perm-cap port that he will need to keep infection free - also means only sponge baths. As you can imagine, Austin leaves the hospital with fear of blood numbers dropping again or of eating something that will aggravate his system. He will need both physical and mental endurance as he works at regaining his health.
We have decided to continue this blog with periodic updates of Austin's recovery at least through next week. Our gratitude runs deep for love expressed and prayers offered.
God bless! Ritch
Friday, July 30, 2010
July 30 - AM Post
The doctor came in this morning with the good news that if things continue to be stable, he can move to outpatient status after his plasma treatment tomorrow ( Saturday). Yeah! The nurse is starting to practice her cart wheel! :) Last night was a tough one ... hospitals really aren't the place to come for rest so Austin was awake much of the night finishing his blood transfusion around 12:30 or 1am. and needing to give blood at 4:30am. As his body continues the healing process, his emotions continue to be on a roller coaster. This morning the doctor was happy to say that his platelet count is at the edge of normal and his hemoglobin was up to 8. He's getting his 11th plasma treatment right now. The ladies that do his treatment have been so kind and we are so thankful for their care and support.
The outpatient journey will be a new routine with M,W,F spent hanging out at St. Joe all day for blood draws, treatment and whatever else is needed. T and Th he can go to Goshen General for a morning blood draw and hopefully have the rest of the day to hang out at home or do whatever he feels like doing (he's quite excited about the option of having the choice of what to do with his time :).
Thank you for continuing to follow Austin's journey. We feel the prayers and ask for continued strength for the next part of the process.
The outpatient journey will be a new routine with M,W,F spent hanging out at St. Joe all day for blood draws, treatment and whatever else is needed. T and Th he can go to Goshen General for a morning blood draw and hopefully have the rest of the day to hang out at home or do whatever he feels like doing (he's quite excited about the option of having the choice of what to do with his time :).
Thank you for continuing to follow Austin's journey. We feel the prayers and ask for continued strength for the next part of the process.
Thursday, July 29, 2010
July 29 - PM Post
After treatment today two additional units of blood needed. Supposed to be a 4 hour process but still waiting on second unit of blood at 9:30pm. Austin has done a good job walking today even though attached to an IV pole all afternoon/evening. As the time gets closer to the possibility of getting out of here it becomes that much more difficult to hang in. Pray for patience. Note: One nurse assistant said she would do a cartwheel if Austin got released tomorrow...if so we'll try to get a pic up on the blog.
July 29 - AM post
Came in this morning to see Austin sitting in a chair eating his breakfast with a t-shirt and shorts on... looked like a normal guy. :) It's fun for him to ditch the hospital gown for a moment or two. We continue to be encouraged as his blood levels continue to progress in the right direction. I've grown up knowing our bodies are intricately made but I have a very new understanding of this truth after daily dissecting his red blood cell production. The one level that continues to lag is his hemoglobin which is back down to 7 so he will be given two more pints of blood today. He will also have a cat scan of his head to just confirm that his headaches are just a normal respond to the trauma his body has been through.
Yesterday was a good day of eating, walking the halls and visiting with family and friends. It was also the first day he wanted to get on his computer and visit Facebook which is a very good sign that he's feeling better! :) He has really enjoyed all the cards and many other reminders that he is being thought of. We have a deeper understanding of the meaning of Christian community... experiencing the assurance of God's love through his people ...through a visit and a hug, through a card that makes you laugh, through a booklet of personal messages and scripture verses that add encouragement to the day. These and many other ways have reminded. Austin and our family know that we are truly blessed.
The tentative plan is to receive the plasma treatment today and tomorrow and possibly Saturday and hopefully he can soon take a day off of hanging out in the dialysis lab. There is some talk of moving to outpatient by the end of the week Austin's trying not to get his hopes up. :) Thank you for your continued prayers for complete healing.
Yesterday was a good day of eating, walking the halls and visiting with family and friends. It was also the first day he wanted to get on his computer and visit Facebook which is a very good sign that he's feeling better! :) He has really enjoyed all the cards and many other reminders that he is being thought of. We have a deeper understanding of the meaning of Christian community... experiencing the assurance of God's love through his people ...through a visit and a hug, through a card that makes you laugh, through a booklet of personal messages and scripture verses that add encouragement to the day. These and many other ways have reminded. Austin and our family know that we are truly blessed.
The tentative plan is to receive the plasma treatment today and tomorrow and possibly Saturday and hopefully he can soon take a day off of hanging out in the dialysis lab. There is some talk of moving to outpatient by the end of the week Austin's trying not to get his hopes up. :) Thank you for your continued prayers for complete healing.
Wednesday, July 28, 2010
July 28 - AM Post
Long talk with Doctor this morning about numbers and when we can expect to be dismissed from the hospital. No promises but IF daily treatments continue to produce the results they have been through Friday there is a chance of going home and then working the plan on an outpatient basis the following week. We are hopeful.
Our prayer concern today is that Austin's kidneys will return to full functioning with no long term damage. This is connected to his one lagging number of low hemoglobin or the production of red blood cells. Again, we are hopeful to see improvement through Friday.
Your many kind words, cards, thoughts, visits, and prayers are holding us all up in ways beyond our natural strengths and abilities. We can only say, THANK YOU! ritch
Our prayer concern today is that Austin's kidneys will return to full functioning with no long term damage. This is connected to his one lagging number of low hemoglobin or the production of red blood cells. Again, we are hopeful to see improvement through Friday.
Your many kind words, cards, thoughts, visits, and prayers are holding us all up in ways beyond our natural strengths and abilities. We can only say, THANK YOU! ritch
Tuesday, July 27, 2010
July 27 - PM Post
Long day. Veins are struggling with all the IV's to add extra blood products and meds - so much so that an IV had to be moved from his Austin's arm to the back of his left hand. Next IV will need to be what is called a PICC line which is an acronym for peripherally inserted central catheter; a long-term type that is inserted peripherally. Tonight, in addition to dinner, Austin is being fed a slow drip of magnesium - which is low.
Overall numbers are still moving in right direction. Ongoing physical prayer concerns: head aches, occasional high blood pressure, swelling of extremities, and low hemoglobin. Ongoing mental concerns: restlessness, anxiety, ability to hang in over the long haul, dealing with (sometimes) annoying (but really swell) parents . (thank God he can't see what I'm writing,) and of course, two words - hospital food!
Overall numbers are still moving in right direction. Ongoing physical prayer concerns: head aches, occasional high blood pressure, swelling of extremities, and low hemoglobin. Ongoing mental concerns: restlessness, anxiety, ability to hang in over the long haul, dealing with (sometimes) annoying (but really swell) parents . (thank God he can't see what I'm writing,) and of course, two words - hospital food!
July 27 - AM Post
Austin just got picked up for his 8th plasma treatment. His doctor noted this morning the encouraging change in the way Austin looks this morning from last Tuesday when he first met him in ICU. :) Austin continues to improve slowly but surely. His liver numbers were actually normal! :) His kidney functioning is improving, his platelet count improved on it's own without a blood transfusion yesterday. His hemoglobin stayed the same BUT it didn't drop so that's positive. It's also fun to see Austin's spirit return. He smiles on occasion and his dry sense of humor is back. He's still retaining quite abit of fluid so when he walks the halls he feels like he has a layer of jello on his legs and feet and stomach that he carries with him. An interesting sensation.
Again the doctor says we will just continue the treatment daily until all numbers are normal. Thank you for your continued prayers and also for the encouraging words that have been shared. We are continually reminded of God's love and the blessing of community.
Again the doctor says we will just continue the treatment daily until all numbers are normal. Thank you for your continued prayers and also for the encouraging words that have been shared. We are continually reminded of God's love and the blessing of community.
Monday, July 26, 2010
July 26 - PM Post
For our post tonight I asked Austin if he wanted to share anything...here is what he said...
"This past couple of weeks have been a whirlwind of emotions, unanswered questions, fear, doubt and pain. I have struggled to have a positive outlook and to keep on going. It's hard to be cooped up in a hospital. I used to ask, 'why am I in the hospital?' I was frustrated. Now I am realizing just how sick I really was and that I needed to be here - even if I would rather be any other place but here. I also realized just how fragile life is and that we cannot take even one day for granted. It's definitely evident that I am not alone. Thanks for your continued support and prayers!"
"This past couple of weeks have been a whirlwind of emotions, unanswered questions, fear, doubt and pain. I have struggled to have a positive outlook and to keep on going. It's hard to be cooped up in a hospital. I used to ask, 'why am I in the hospital?' I was frustrated. Now I am realizing just how sick I really was and that I needed to be here - even if I would rather be any other place but here. I also realized just how fragile life is and that we cannot take even one day for granted. It's definitely evident that I am not alone. Thanks for your continued support and prayers!"
July 26 - AM Post
It was great to arrive at the hospital this morning to find Austin standing in his bathroom, brushing his teeth. He is trying to be as independent as possible and to take control of his routine as much as he can so putting on some new shorts and brushing his teeth before he's wheeled anywhere or poked and prodded feels great to him. :) His kidney doctor came in early this morning to say that his levels continue to be improving slowly which he is encouraged by. His hemoglobin continues to lag behind so they will give blood transfusions as needed. His platelet counts are slowly rising. Austin grilled him about how long he would be needing his catheter in his shoulder area because he really didn't want to go back to work at Lowes with this thing sticking out. :) The doctor just smiled and encouraged him not to worry about it and just work on building his strength by eating and trying to walk around the halls.
He went down for his 7th plasma treatment this morning. The doctor said they will just keep doing them daily for now. The people who are caring for him during this time are just great. They've come to know him and they are our new good friends. Ritch is going back to work this week and I (Char) feel so grateful to have the time off to be at the hospital. Leslie and Tyler are heading to Marion today to unload their truck and settle into their new home but they are close enough to come and visit on Wednesday! :)
Thank you for your continued prayers and many acts of support and kindness. This morning in my quiet time I felt God reminding me I need to let go and trust Him. It's a continual learning for me ... to truly trust God without trying to remind Him what I think would be best or what I believe Austin needs. My cousin Brian reminded me that God loves Austin even more than I do. :) So I will trust Him.
He went down for his 7th plasma treatment this morning. The doctor said they will just keep doing them daily for now. The people who are caring for him during this time are just great. They've come to know him and they are our new good friends. Ritch is going back to work this week and I (Char) feel so grateful to have the time off to be at the hospital. Leslie and Tyler are heading to Marion today to unload their truck and settle into their new home but they are close enough to come and visit on Wednesday! :)
Thank you for your continued prayers and many acts of support and kindness. This morning in my quiet time I felt God reminding me I need to let go and trust Him. It's a continual learning for me ... to truly trust God without trying to remind Him what I think would be best or what I believe Austin needs. My cousin Brian reminded me that God loves Austin even more than I do. :) So I will trust Him.
Sunday, July 25, 2010
July 25 - PM Post
Leslie and Tyler arrived this afternoon and we got permission to take Austin on a little wheel chair ride outside to get some fresh air. We hit a gravel trail next to a private lake beside the hospital and could have used 4 wheel drive to get through several washouts from last Friday's thunderstorm. Nice to smell the fresh air and get a little sun.
Plasma treatment went well but hemoglobin is still very low so Austin will be receiving two more units of blood this evening which, unfortunately, means being hooked to an IV for another 4 hours after already spending 4 hours on his back with plasmapheresis. Yet, we are so thankful for all the resources here to nurture the body back to health.
Another plasma treatment is scheduled for tomorrow morning as they continue on a very aggressive approach to kicking the toxins still in the bloodstream. He's been able to keep his food down a second day although he doesn't have a strong appetite and he's not totally excited about hospital food. :) Today he's feeling weary of the journey so we continue to pray for him to have peace and patience.
Plasma treatment went well but hemoglobin is still very low so Austin will be receiving two more units of blood this evening which, unfortunately, means being hooked to an IV for another 4 hours after already spending 4 hours on his back with plasmapheresis. Yet, we are so thankful for all the resources here to nurture the body back to health.
Another plasma treatment is scheduled for tomorrow morning as they continue on a very aggressive approach to kicking the toxins still in the bloodstream. He's been able to keep his food down a second day although he doesn't have a strong appetite and he's not totally excited about hospital food. :) Today he's feeling weary of the journey so we continue to pray for him to have peace and patience.
July 25 - AM Post
Twelve days and counting. Doctor's report this morning confirmed that plasma treatments are continuing to have a positive affect on blood count and organ functioning. Kidney functioning and platelet count continue to improve slowly. One area of concern is low hemoglobin which indicates residual toxins still in the blood system. Austin will continue to receive daily plasmapheresis until normal levels are achieved. He had a more restful night with the help of anti anxiety medication and tylenol. He continues to be fearful of eating but as he has success keeping things down, we hope he can relax and try different things.
Our verse for the day is taken from words of encouragement from Roger, Rhonda, and Amanda Yoder. Psalm 62:8 says "Trust in him at all times, O people; pour out your heart before him; God is a refuge for us." When we talked about this verse with Austin he shared appreciation for these words, but also the difficulty of believing them when in the heart of the struggle. We pray that the reality of these words of promise will take root today and in the days to come.
We are excited that Leslie and Tyler will be arriving sometime later today as they are moving back to Marion, IN. Austin is excited to see them. Austin is also open to visitors depending on how he is feeling and his treatment schedule. If wanting to visit, check in with Char by texting 574.312.0801. Thank you for your continued prayers!
Our verse for the day is taken from words of encouragement from Roger, Rhonda, and Amanda Yoder. Psalm 62:8 says "Trust in him at all times, O people; pour out your heart before him; God is a refuge for us." When we talked about this verse with Austin he shared appreciation for these words, but also the difficulty of believing them when in the heart of the struggle. We pray that the reality of these words of promise will take root today and in the days to come.
We are excited that Leslie and Tyler will be arriving sometime later today as they are moving back to Marion, IN. Austin is excited to see them. Austin is also open to visitors depending on how he is feeling and his treatment schedule. If wanting to visit, check in with Char by texting 574.312.0801. Thank you for your continued prayers!
Saturday, July 24, 2010
July 24 - PM Post
This evening Austin is doing his assigned walk around the halls with Ritch at his side while I (Char) am writing this. We feel grateful to be able to share some positive updates today as we celebrate 1) He is no longer connected to a catheter and has been able to go to the bathroom on his own (the threat of another small tube needing to be inserted was quite motivating :). 2) He has eaten real food at lunch and at supper and was able to keep it down! 3) He has strolled the halls 4 times today without falling or mooning anyone. 4) The doctor has prescribed some anti-anxiety medication that helps him relax and rest when he starts to feel agitated.
He is weak and tires easily but it feels so good to be able to get out of bed and walk around. He will be having his 6th plasma treatment tomorrow morning. We are grateful for the kind people who work with this treatment as they don't usually work on Sunday but are making a special effort to continue to build on Austin's positive report today.
Thank you for continuing to lift us up in prayer. We feel the prayers and the support from all over the US and Canada. We are humbled and blessed.
He is weak and tires easily but it feels so good to be able to get out of bed and walk around. He will be having his 6th plasma treatment tomorrow morning. We are grateful for the kind people who work with this treatment as they don't usually work on Sunday but are making a special effort to continue to build on Austin's positive report today.
Thank you for continuing to lift us up in prayer. We feel the prayers and the support from all over the US and Canada. We are humbled and blessed.
July 24 - AM Post
Austin's prolonged illness has made us ever more aware of our need for and dependence on God. Because it is difficult for us to find the words to pray, we have decided that praying words of scripture is a way for us to center our hearts and thoughts, as well as a way to listen to what God is saying/teaching us. Here's the verse for today.In you, O Lord, I seek refuge; do not let me be put to shame; in your righteousness deliver me. Incline your ear to me; rescue me speedily. Be a rock of refuge for me, a strong fortress to save me. Psalm 31:1-2
Austin had a rough night including vomiting his dinner. He has become quite anxious and discouraged. I (Ritch) arrived at the hospital by 7:20am to learn that they would be doing the plasmapheresis in 10 minutes. The nurses suggested he eat something before the treatment, which he tried and then vomited again. Discouragement.
Once in the room where the transfer takes place we were able to talk with his main doctor. We were both feeling down until we heard his report from the morning blood tests. There was improvement in all levels including kidney and liver functioning, as well as platelet count - the first time this number has turned around. Other good news included that his catheter (bladder) will be taken out this afternoon.
After treatment today, the plan is to balance times of rest with frequent walking excursions in the hall and trying to eat again very, very, very slowly. As you are aware of the stylish dimensions of hospital gowns, maybe we need to register a prayer concern that no one will be overly traumatized by walk by "moonings." Char and I are planning to alternate spending nights at the hospital for the next few until Austin has worked through some of the anxiety issues. Thanks for your care, concern, prayers, and friendship.
Austin had a rough night including vomiting his dinner. He has become quite anxious and discouraged. I (Ritch) arrived at the hospital by 7:20am to learn that they would be doing the plasmapheresis in 10 minutes. The nurses suggested he eat something before the treatment, which he tried and then vomited again. Discouragement.
Once in the room where the transfer takes place we were able to talk with his main doctor. We were both feeling down until we heard his report from the morning blood tests. There was improvement in all levels including kidney and liver functioning, as well as platelet count - the first time this number has turned around. Other good news included that his catheter (bladder) will be taken out this afternoon.
After treatment today, the plan is to balance times of rest with frequent walking excursions in the hall and trying to eat again very, very, very slowly. As you are aware of the stylish dimensions of hospital gowns, maybe we need to register a prayer concern that no one will be overly traumatized by walk by "moonings." Char and I are planning to alternate spending nights at the hospital for the next few until Austin has worked through some of the anxiety issues. Thanks for your care, concern, prayers, and friendship.
Friday, July 23, 2010
July 23 - PM Post
Big day. Two blood transfusions, surgical procedure to install jugular catheter, and another plasma transfer. Things got started at 8:15am and Austin didn't return to his room until 5:00pm. Char and I joined him back in the room for dinner where we saw him chew a piece of toast, the first thing of any substance since July 13. Small bites. Small steps.
We are hanging out tonight and planning on watching a movie together. Austin wants to give a shout out to all of you - "Thanks for your prayer and support...it means more than you know."
We are hanging out tonight and planning on watching a movie together. Austin wants to give a shout out to all of you - "Thanks for your prayer and support...it means more than you know."
July 23 - AM Post
Austin did not have a very restful night and the doctors shared test results this morning that hemoglobin and potassium were both down. He received a unit of blood and will have a catheter surgically install in his internal jugular (near collarbone) which will be used for next plasmapheresis. His next treatment will take place this afternoon.
Overall, he is feeling a bit dizzy and weak because of his blood count. It is also becoming increasingly difficult to adjust to the reality that this is going to be one long journey as he questioned doctors this morning as to why he is not getting any better.
We do see answered prayer as there are signs of healing in his digestive system and colon. This is reflected in the doctor's opening up of his diet to eat whatever he wants. Another thing that Austin is more that ready to get rid of is the catheter for the bladder which will be removed by tomorrow if things continue to improve as they have been. Doctors have also shared that "Austin is nearing the top of the hill" and we should be seeing improved blood count numbers in the next 48 hours.
For ongoing prayer, one of the greatest concerns is kidney functioning which is still very low. Also, pray that the plasmapheresis will help his blood count to move toward normal. Char and I recognize that many of you have (either personally or with your children) walked difficult journeys with health related issues. Pray that we can also remain strong and focused on the ever present grace and strength of God.
Overall, he is feeling a bit dizzy and weak because of his blood count. It is also becoming increasingly difficult to adjust to the reality that this is going to be one long journey as he questioned doctors this morning as to why he is not getting any better.
We do see answered prayer as there are signs of healing in his digestive system and colon. This is reflected in the doctor's opening up of his diet to eat whatever he wants. Another thing that Austin is more that ready to get rid of is the catheter for the bladder which will be removed by tomorrow if things continue to improve as they have been. Doctors have also shared that "Austin is nearing the top of the hill" and we should be seeing improved blood count numbers in the next 48 hours.
For ongoing prayer, one of the greatest concerns is kidney functioning which is still very low. Also, pray that the plasmapheresis will help his blood count to move toward normal. Char and I recognize that many of you have (either personally or with your children) walked difficult journeys with health related issues. Pray that we can also remain strong and focused on the ever present grace and strength of God.
Thursday, July 22, 2010
July 22 - PM Post
Tonight we are nearing the end of Austin's third plasmapheresis. It has been another long day but there is good news tonight. Following the treatment they will be removing the femoral port (used for the procedure) which will mean much more freedom to move. In addition, we just got word that later this evening he will be transferred out of ICU to the Renal Unit which comes with a nicer room and a reprieve from the constant noise and activity he has been experiencing.
Austin is more than ready to increase his movement - in more ways than one (metaphorically and literally) and we offer this as a very practical prayer concern - that "all systems are go" by the morning.
Tomorrow morning a new port will be installed for the plasmapherisis with treatments continuing daily until the doctors see the progress needed. We have been reading blogposts and facebook messages to Austin each day and they provide a wonderful source of encouragement and support.
Austin is more than ready to increase his movement - in more ways than one (metaphorically and literally) and we offer this as a very practical prayer concern - that "all systems are go" by the morning.
Tomorrow morning a new port will be installed for the plasmapherisis with treatments continuing daily until the doctors see the progress needed. We have been reading blogposts and facebook messages to Austin each day and they provide a wonderful source of encouragement and support.
July 22 - am post
The doctor met us this morning to discuss the latest test results. The blood count numbers revealed platelets about the same, with hemoglobin dropping slightly. Kidney functioning was also slightly worse but the rate of decline was slowing. Overall, the doctor feels we are reaching a point where the treatments will begin to reverse the blood count numbers and kidney functioning in a positive direction. It feels like we are still working our way uphill in this battle.
Austin will have his third plasma transfer later this morning, and one point of good news is that he will then have the port removed from his leg which will mean the freedom to move around rather than remaining flat on his back 24/7. With the immobility over the last two days it has been difficult to get ride of fluid which was led to a distended abdomen which has been very uncomfortable.
We continue to hold on to your prayers and the many expressions of kindness as we walk this long road. We ask for prayer specifically that the third treatment today will provide a "tipping point" toward positive results and the road to recovery.
Austin will have his third plasma transfer later this morning, and one point of good news is that he will then have the port removed from his leg which will mean the freedom to move around rather than remaining flat on his back 24/7. With the immobility over the last two days it has been difficult to get ride of fluid which was led to a distended abdomen which has been very uncomfortable.
We continue to hold on to your prayers and the many expressions of kindness as we walk this long road. We ask for prayer specifically that the third treatment today will provide a "tipping point" toward positive results and the road to recovery.
Wednesday, July 21, 2010
July 21 - Evening Update
Two small but good signs today include; Keeping down a liquid diet all three meals! (not so yummy but a great step) And word from "the plumbing doctor" that no extra measures will be needed to jump-start the urinary tract. Both are small steps but seem like giant leaps to us.
In spite of the difficult situation and testing of patience Austin still has not lost his sense of humor. He shared this morning with a nurse, "I have so many tubes hooked up to me I feel like an inflatable." In the afternoon he also gave his mom some grief about her nerdyness which brought smiles to us all.
For now, we wait for tomorrow mornings blood draw to see where things are at. Thanks for your continued prayers!
In spite of the difficult situation and testing of patience Austin still has not lost his sense of humor. He shared this morning with a nurse, "I have so many tubes hooked up to me I feel like an inflatable." In the afternoon he also gave his mom some grief about her nerdyness which brought smiles to us all.
For now, we wait for tomorrow mornings blood draw to see where things are at. Thanks for your continued prayers!
July 21 - Noon update
Austin is currently undergoing his second plasma treatment. Within several hours he'll receives 4700cc of plasma through a port they inserted into his groin. Because of this port, he's unable to move around and is bedridden for the next several days. The risk of infection around the port site is high, and so far it has been painful. We continue to pray that all goes smoothly so that he can receive the plasma his body so desperately needs. The hope would be that the plasma transfer will enable his platelet count to increase enough to move the port higher.
He has been pumped with many fluids in the past 24 hours, but has been unable to urinate. Because of this, a catheter was inserted this morning but for whatever reason, his bladder isn't draining. A nurse was able to send something into the tube to release some of the urine, but not much. In the mean time, it's very uncomfortable. They're sending in a specialist this afternoon to see what he can do. On a positive note, the nurse was pleased to see that Austin is indeed still producing urine, which is a good sign. Austin's kidney function continues to be a big concern, so depending on what the next 24 hours hold, dialysis may be necessary. They're sending in a kidney specialist this afternoon as well.
Though his body is tired, Austin is still fighting. We are delighted that he was able to keep down jello and a fruit pop this morning, along with some 7UP. This is progress and the first food intake he's had in a week and a half. He enjoyed it. :) We enjoyed it. It's something to celebrate.
We're currently working on getting a DVD player hooked up to the plasma TV he has in his room. Movies help pass the time as he's confined to his bed and waiting. We've been blessed by the incredible medical staff and excellent facilities at Saint Joe. We feel even more blessed by the incredible support network of friends and family all over the country, sending their love through emails, texts, phone messages and blog post. Thank you for joining us so readily in this difficult time. We continue to feel your prayers and support across the miles and we have no doubt that God is here in this place. Please continue to lift Austin up. The next 24 hours are crucial. Because of this, visitation is still discouraged. Austin is in a very vulnerable place right now, so they want to keep him as isolated as possible. In the mean time, we watch, and wait, and pray.
I was talking to Mom this morning on the phone and we both realized we've been singing the same, rather ancient Twila Paris melody in the past several days as we struggle to understand and lift Austin to Lord. I'd like to end this post with those words; I will trust you.
Sometimes my little heart can't understand, what's in your will, or what's in plan.
So many times I'm tempted to ask you why.
But I could never forget it for long, Lord what you do, could not be wrong.
So I believe you, even when I must cry...
Do I trust you Lord, does the river flow?
Do I trust you Lord, does the north wind blow?
You can see my heart, you can read my mind, and you've got to know I would rather die,
than to loose my faith in the one I love
Do I trust you Lord?
Do I trust you?
I will trust you Lord, when I don't know why
I will trust you Lord till the day I die.
I will trust you Lord when I'm blind with pain.
You were God before and you'll never change.
I will trust you.
I will trust you.
Yes Lord. We do trust you. We praise you because Austin IS fearfully and wonderfully made and we know you're holding him in the palm of your hand. Lord we do believe, only help our unbelief.
He has been pumped with many fluids in the past 24 hours, but has been unable to urinate. Because of this, a catheter was inserted this morning but for whatever reason, his bladder isn't draining. A nurse was able to send something into the tube to release some of the urine, but not much. In the mean time, it's very uncomfortable. They're sending in a specialist this afternoon to see what he can do. On a positive note, the nurse was pleased to see that Austin is indeed still producing urine, which is a good sign. Austin's kidney function continues to be a big concern, so depending on what the next 24 hours hold, dialysis may be necessary. They're sending in a kidney specialist this afternoon as well.
Though his body is tired, Austin is still fighting. We are delighted that he was able to keep down jello and a fruit pop this morning, along with some 7UP. This is progress and the first food intake he's had in a week and a half. He enjoyed it. :) We enjoyed it. It's something to celebrate.
We're currently working on getting a DVD player hooked up to the plasma TV he has in his room. Movies help pass the time as he's confined to his bed and waiting. We've been blessed by the incredible medical staff and excellent facilities at Saint Joe. We feel even more blessed by the incredible support network of friends and family all over the country, sending their love through emails, texts, phone messages and blog post. Thank you for joining us so readily in this difficult time. We continue to feel your prayers and support across the miles and we have no doubt that God is here in this place. Please continue to lift Austin up. The next 24 hours are crucial. Because of this, visitation is still discouraged. Austin is in a very vulnerable place right now, so they want to keep him as isolated as possible. In the mean time, we watch, and wait, and pray.
I was talking to Mom this morning on the phone and we both realized we've been singing the same, rather ancient Twila Paris melody in the past several days as we struggle to understand and lift Austin to Lord. I'd like to end this post with those words; I will trust you.
Sometimes my little heart can't understand, what's in your will, or what's in plan.
So many times I'm tempted to ask you why.
But I could never forget it for long, Lord what you do, could not be wrong.
So I believe you, even when I must cry...
Do I trust you Lord, does the river flow?
Do I trust you Lord, does the north wind blow?
You can see my heart, you can read my mind, and you've got to know I would rather die,
than to loose my faith in the one I love
Do I trust you Lord?
Do I trust you?
I will trust you Lord, when I don't know why
I will trust you Lord till the day I die.
I will trust you Lord when I'm blind with pain.
You were God before and you'll never change.
I will trust you.
I will trust you.
Yes Lord. We do trust you. We praise you because Austin IS fearfully and wonderfully made and we know you're holding him in the palm of your hand. Lord we do believe, only help our unbelief.
July 21, am update
After his first plasma transfer, which wasn't completed until after 11p.m. last night, Austin's overall condition has not improved. His kidney functioning has actually worsened. Doctors have shared that it is not unusual because it often takes 24 hours for full effects of the treatment to take place. Overall, his blood count is not horrible, but needs to improve over the next 48 hours.
The greatest concern at this point is the functioning of his kidneys. Most likely he will have to undergo the not so pleasant process of a catheter to drain his bladder. A major prayer concern is that his kidneys begin to respond to the plasma treatments. If kidney function continues to decline we may be looking at at least temporary dialysis - which would not be pleasant.
One sign of good news this morning is Austin's desire to try jello and liquids, which he has been too nauseated to take since entering the hospital. We continue to face each new day with the knowledge that God is faithful and a gratefulness for all who are walking this journey with us.
The greatest concern at this point is the functioning of his kidneys. Most likely he will have to undergo the not so pleasant process of a catheter to drain his bladder. A major prayer concern is that his kidneys begin to respond to the plasma treatments. If kidney function continues to decline we may be looking at at least temporary dialysis - which would not be pleasant.
One sign of good news this morning is Austin's desire to try jello and liquids, which he has been too nauseated to take since entering the hospital. We continue to face each new day with the knowledge that God is faithful and a gratefulness for all who are walking this journey with us.
Tuesday, July 20, 2010
The journey
Friends & Family,
As many of you may already know, Austin is currently in the ICU at Saint Joe Regional Medical Center in Mishawaka, IN.
The journey began on July 11, when Austin began experiencing flu-like symptoms which continued to get worse throughout the next two days. By Tuesday, July 13 he had to leave work early due to the continued worsening of his symptoms. By Wednesday, July 14, he was experiencing severe abdominal pain, and after a doctor visit and two trips to the emergency room at Goshen Hospital, he was admitted and placed on IV's.
Much to our dismay, Austin's sickness continued to get worse. A colonoscopy was ordered and performed on Saturday which determined he had ulcerated colitis. Doctors immediately prescribed several antibiotics and pain medications over the next few days to treat this condition. However, instead of improving, his condition continued to get worse to the point where he couldn't keep any foods or liquids down. Blood tests were ordered and he was moved to the ICU at Goshen hospital Monday morning. The ICU Doctor at Goshen then brought in a consultation of other doctors, specialists to help provide some insight into Austin's continuing worsening symptoms.
It was determined this morning, July 20, that Austin's body has taken on toxicity in the blood system that originated with some form of bacteria that he has been dealing with from the beginning (most likely the culprit of the colitis). The condition he is currently experiencing is quite rare and requires a series of plasma transfusions in order to remove the toxicity from his blood that has been attacking his liver and kidneys.
He was transported to Saint Joe Regional Medical Center via ambulance this morning. His first plasma exchange treatment starts this evening. The specialist handling Austin's care believes this to be the best course of action at this point. Our hope is that this plasma transfusion will provide a much needed chance for Austin's body to begin the process of recovery which will take as long as needed.
As a family, we appreciate your continued prayers as we walk this journey with Austin. Though it doesn't always make sense, we are reminded that God is still sovereign - even over this - and he is needed more than ever.
As many of you may already know, Austin is currently in the ICU at Saint Joe Regional Medical Center in Mishawaka, IN.
The journey began on July 11, when Austin began experiencing flu-like symptoms which continued to get worse throughout the next two days. By Tuesday, July 13 he had to leave work early due to the continued worsening of his symptoms. By Wednesday, July 14, he was experiencing severe abdominal pain, and after a doctor visit and two trips to the emergency room at Goshen Hospital, he was admitted and placed on IV's.
Much to our dismay, Austin's sickness continued to get worse. A colonoscopy was ordered and performed on Saturday which determined he had ulcerated colitis. Doctors immediately prescribed several antibiotics and pain medications over the next few days to treat this condition. However, instead of improving, his condition continued to get worse to the point where he couldn't keep any foods or liquids down. Blood tests were ordered and he was moved to the ICU at Goshen hospital Monday morning. The ICU Doctor at Goshen then brought in a consultation of other doctors, specialists to help provide some insight into Austin's continuing worsening symptoms.
It was determined this morning, July 20, that Austin's body has taken on toxicity in the blood system that originated with some form of bacteria that he has been dealing with from the beginning (most likely the culprit of the colitis). The condition he is currently experiencing is quite rare and requires a series of plasma transfusions in order to remove the toxicity from his blood that has been attacking his liver and kidneys.
He was transported to Saint Joe Regional Medical Center via ambulance this morning. His first plasma exchange treatment starts this evening. The specialist handling Austin's care believes this to be the best course of action at this point. Our hope is that this plasma transfusion will provide a much needed chance for Austin's body to begin the process of recovery which will take as long as needed.
As a family, we appreciate your continued prayers as we walk this journey with Austin. Though it doesn't always make sense, we are reminded that God is still sovereign - even over this - and he is needed more than ever.
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